this post was submitted on 28 May 2024
94 points (97.0% liked)

Ask Lemmy

27006 readers
1430 users here now

A Fediverse community for open-ended, thought provoking questions

Please don't post about US Politics. If you need to do this, try !politicaldiscussion@lemmy.world


Rules: (interactive)


1) Be nice and; have funDoxxing, trolling, sealioning, racism, and toxicity are not welcomed in AskLemmy. Remember what your mother said: if you can't say something nice, don't say anything at all. In addition, the site-wide Lemmy.world terms of service also apply here. Please familiarize yourself with them


2) All posts must end with a '?'This is sort of like Jeopardy. Please phrase all post titles in the form of a proper question ending with ?


3) No spamPlease do not flood the community with nonsense. Actual suspected spammers will be banned on site. No astroturfing.


4) NSFW is okay, within reasonJust remember to tag posts with either a content warning or a [NSFW] tag. Overtly sexual posts are not allowed, please direct them to either !asklemmyafterdark@lemmy.world or !asklemmynsfw@lemmynsfw.com. NSFW comments should be restricted to posts tagged [NSFW].


5) This is not a support community.
It is not a place for 'how do I?', type questions. If you have any questions regarding the site itself or would like to report a community, please direct them to Lemmy.world Support or email info@lemmy.world. For other questions check our partnered communities list, or use the search function.


Reminder: The terms of service apply here too.

Partnered Communities:

Tech Support

No Stupid Questions

You Should Know

Reddit

Jokes

Ask Ouija


Logo design credit goes to: tubbadu


founded 1 year ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
[–] j4k3@lemmy.world 3 points 6 months ago (1 children)

It's complicated. I exercise regularly. I'm a former amateur bicycle racer, and still ride, just nothing like I did in the past. My thoracic portion of my back is neutralized on a bike because I know how to fit professionally.

I'm degrading over time. For instance cooking most of my food for 8-10 days within an hour of being on my feet is getting difficult but is still doable. Interacting with me in the later half of that experience is a no go. I'm too stressed to deal with other people. By the time I am done, I am nonfunctional mentally for the rest of the day due to the pain.

[–] intensely_human@lemm.ee 4 points 6 months ago

I’m familiar with that mental state. I can keep functioning long after I become too unpleasant for polite company.

I have a disease whose prognosis is that my pain levels will steadily increase for the rest of my life. Currently it’s just elevated pain response, but eventually it will become spontaneous, unconditioned pain throughout my body.

Really depressed the fuck out of me at first.

But then I realized that science is always evolving, and just because that’s the typical course of someone with central sensitization syndrome, doesn’t mean it’s the only possible course.

Heck thirty years ago we didn’t even know nerves grew back. Now everyone knows the term neurogenesis.

In my studies, I’ve had to learn a lot about physiology, neurology, stress response, etc. If you would ever be interested in talking strategies for managing this thing let me know.