this post was submitted on 16 Jul 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] sentientity@lemm.ee 7 points 3 months ago (1 children)

The worst is when a specialist confidently repeats known false information to you. Like, easily debunked by the most cursory glance at a state health department website type stuff. I have started bringing print outs about my illness from reputable sources to appointments with me just in case.

The worst part of being sick is not my symptoms. It’s having to interface with the healthcare system.

[–] mecfs@lemmy.world 1 points 3 months ago (1 children)

Yep this is awful. Some doctors don’t know how to keep their ego in check.

Makes you really appreciate the ones who admit they don’t know. Though they are few and far between.

[–] sentientity@lemm.ee 1 points 3 months ago

Yep. I treasure every medical professional who has been honest with me about not knowing something.