this post was submitted on 30 May 2024
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Thanks for sharing your experience. It sounds like you have your hands full and as a parent I can only empathize. I totally hear you about media representation missing the mark. We have some roadway to make. I'm surprised how many parent friends we have that are relatively clueless (even though I must admit, until this January when we got the diagnosis I was too).
My little one started group therapy about two months ago and I'm super grateful even though the journey ahead is still quite long.
On the Asperger's topic: I was under the impression Asperger's is no longer in use as a diagnosis and was folded into the ASD (Autism Spectrum Disorder). At least that's what we learned this year throughout the diagnosis process.
Stay strong brother (or sister)!
From a diagnosis and classification, Autism = Asperger's.
From a lived experience, Autism != Asperger's.
The latter has been validated by every expert I have talked over the years from doctors to therapists to education.
Ok. Interesting. I'll take your word at it.
Please don't but pay attention to your support group as you move forward. You will learn there are a lot of people that genuinely care about your child and their future. The irony of course is the vast majority of these people make little to no money and are doing what they do because they love it.
As part of your research are you speaking with autistic adults?
I have not yet. I would like to though