Disability and Accessibility

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All things disability and accessibility related, and advocacy for making those things better.

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chronic pain and CRPS (lemmy.sdf.org)

submitted 1 year ago by malvidx@lemmy.sdf.org to c/disability@beehaw.org

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I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I've been having severe pain in that leg and they can't figure out why. Finally it looks like I may have CRPS. I have every single symptom. It feels really good to finally have a name for the hell I've been going through for so long. I just needed to write it out. I'm basically home/bed bound except for medical appointments. I'm just tired.

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[–] malvidx@lemmy.sdf.org 3 points 1 year ago* (last edited 1 year ago)

Thanks sorry it's taken me awhile to respond. Its been arough few days. I can relate a lot to your post. My doctors have all said structuraly you're fine we don't understand! I've been struggling to do anything except lay in bed. I have a home health aide that comes 10 hours a day 7 days a week so that's amazingly helpful. I hope you get some relief too.