this post was submitted on 15 Jul 2023
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Autism

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submitted 1 year ago* (last edited 1 year ago) by Danni293@lemmy.world to c/autism@lemmy.world
 

I'm sorry if this is insensitive or if this has been asked already, but I would like some feedback from the ASD community about this.

I've always been kind of socially awkward, I am generally uncomfortable with meeting new people outside of professional environments, and prolonged eye-contact, even with close friends, is weird for me. My older sister was the first to bring up the idea, after she had a kid who potentially had autism, that I might also be on the spectrum. And within the last few months my mom also brought it up that I might be on the spectrum. She never had me tested because I was born in '95 and, by her account, testing just wasn't common except for more extreme cases.

But she suggested that I should get tested, and honestly I don't know how I feel about it. It's not that I'm worried about being on the spectrum but I feel like there's no point in knowing because what would it change for me? I personally don't see how knowing would benefit me; and even if I am on the spectrum, my ignorance of it doesn't seem to be harming me. I worry that knowing for sure will just give me an excuse, and thus far I've done fine without knowing, I might even argue that not knowing (if I am on the spectrum) has just forced me to improve myself, develop my ability to empathize and be introspective, and enhance my social skills. To me, getting tested would just mean putting an unnecessary label on myself that doesn't actually define me.

What are your opinions? Also, what is the testing procedure like? Would it even be accurate given that I'm almost 30 and have already had to learn through experience how to properly interact with people socially?

I appreciate whatever advice or anecdotes you can provide.

Edit: I also want to apologize if any of my terminology is offensive, I'm working off of the mainstream knowledge I have about ASD, so if it's out of date it's truly because of ignorance and not malice.

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[–] ablackcatstail@lemmy.goblackcat.com 15 points 1 year ago (1 children)

If you think you're going to need formal and legal accommodations in your workplace or career then it would be a good idea to get an official diagnosis. I had a late diagnosis at 38 myself.

[–] aJazzyFeel@lemmy.world 7 points 1 year ago (2 children)

I'm 35 and terrified to get started on the process. It helps me knowing you got your diagnosis around the same age I would be if I pull through now. This motivates me a lot and relieves some of my age-related anxiety, so thank you for posting!

You're welcome and I am happy that I could make you feel better.

[–] avirse 3 points 1 year ago (1 children)

The woman who runs my local autistic adults support service was diagnosed age 50. I've no idea of her age now, but she has remarked how freeing it was when she stopped masking that day. I think her "I'm old enough to no longer give a shit" energy kicked in early.

[–] aJazzyFeel@lemmy.world 2 points 1 year ago

I wanna be like her ❤️