this post was submitted on 21 Jun 2023
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Disability
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That holistic approach you mention is one of the very few things that gives me any quality of life, frankly. I have one cup of (caffeinated) tea a day and that's it. Salt is probably one of the few things I have to have a ton of but I'm also very regularly nutrient deficient if I don't keep on top of it (sodium, potassium, etc).
Since my injury, I just.. don't go out longer than a very brief period in summer. It knocks me down for days if I do and just isn't worth it. I hibernate in a bedroom, with blackout curtains, take care of the dog, and do precious little else. It's a very sparse existence to be sure but less agonising. Aside from ice, these kinds of techniques are about all I can use on a regular basis? My migraines are too frequent and easily triggered to rely on meds - the triptans I've tried either haven't helped or have made things worse and you have MOH with NSAIDS. Steroids are a handful of times a year thing and give me absolutely wild blood sugar levels.
I'm still working my way through preventative medication options. It feels like I've been through everything but I'm sure there's more. I've a trial of this medication for 6 months, 3 at this dose, probably 3 at reduced.