this post was submitted on 11 Jun 2023
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Disability and Accessibility

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All things disability and accessibility related, and advocacy for making those things better.

See also this community's sister subs Feminism, LGBTQ+, Neurodivergence, and POC.


This community's icon was made by Aaron Schneider, under the CC-BY-NC-SA 4.0 license.

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Introduction (beehaw.org)
submitted 1 year ago* (last edited 1 year ago) by xuxxun@beehaw.org to c/disability@beehaw.org
 

Hello everyone! This is the first post in the newly made Disability and accesibility community. Feel free to post anything health, chronic illness, disability or accesibility related. If you need a space for support or sharing your experiences regarding all of the above topics, this is the right place as well :)

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[โ€“] emma@beehaw.org 2 points 1 year ago (1 children)

Hello. I've been chronically ill for decades, with many symptoms going back to my earliest childhood memories. Dx are fibromyalgia, ME/CFS and FND (functional neurological disorder, which basically means something happens in the brain and then something weird happens in the body, and they're related, we don't know why and aren't much fussed to find out). I also had unDxed endometriosis, possibly for 20 years, as well. Because GPs have been so unhelpful, I've had to teach myself a lot. Nutritional approaches have helped me the most.

[โ€“] xuxxun@beehaw.org 1 points 1 year ago

Unhelpful doctors - such a classic and very relatable unfortunately. I wish us all more empathetic and competent medical proffesionals.