Disability and Accessibility

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All things disability and accessibility related, and advocacy for making those things better.

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chronic pain and CRPS (lemmy.sdf.org)

submitted 1 year ago by malvidx@lemmy.sdf.org to c/disability@beehaw.org

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I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I've been having severe pain in that leg and they can't figure out why. Finally it looks like I may have CRPS. I have every single symptom. It feels really good to finally have a name for the hell I've been going through for so long. I just needed to write it out. I'm basically home/bed bound except for medical appointments. I'm just tired.

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[–] Nugget@beehaw.org 2 points 1 year ago (1 children)

Having a label for your condition is a gratifying and important step, congratulations on finally figuring that out. Once I had a label for the source of my pain and problems, I felt I crossed a mental threshold where I could put it in a box and contain it. It was no longer an overwhelming question mark floating around. I hope this is a first step in many more improvements for you!

[–] malvidx@lemmy.sdf.org 2 points 1 year ago* (last edited 1 year ago)

Thanks! It really is. It feels (dare I say) validiating. I've spent so many years being told "we don't know" and one pain doctor even called me drug seeking. So I'm SO happy to start hopefully getting relief.